Wednesday, June 29, 2011

Doing well after steroid injection & HA adjustment

Not a whiff of symptoms since that day after the injection.   That gives me hope.   Saw Dr H at work in the OR and told him about the symptoms I had the day after.   He didn't seem encouraged and called it another failure of treatment.   I don't know.   I've been doing well since so I see it as positive.   The HA tech at Costco added a couple of new programs to my HA and turned up the volume on my dead left ear.    I'm hearing better at work.    If this is what a stable, chronic disease state is, then I could live with it. 

Wednesday, June 22, 2011

One more step along

Dr not pleased that I had two vertigo attacks since starting on the big diuretics.  My BP is down to 104/50.  Not a lot of room to go on further diuretics.  Got the steroid injection into the inner ear.  Not a severely painful procedure but left me with a headache all day.  Hopefully, this will calm any inflammation in the vestibular body and completely stop the vertigo.  Next step in the treatment, surgery to implant a shunt so to allow the endolymph to flow.    Gentamycin is not a good option.   It will kill the balance problem but also has a 30% chance of killing the hearing function in the left ear.
Asked about the sodium connection.   As my experience showed, there is a direct connection between salt intake and symptoms.    An overindulgence in pizza = a return of symptoms within 24 hrs.
Got the HA reprogrammed with latest audiograms.  5 programs now to try out in the noisy OR.   Will keep notes and see if this latest adjustment will help me keep my job.

The day after the injection, I had about 90 mins of mild to moderate vertigo.  Never got to nausea and resolved itself.   that's an improvement.

Monday, June 20, 2011

Dr tomorrow, Vertigo today

got home from work early.  planned to do some yard work but I'm having a moderate vertigo attack.   sudden onset, no nausea(yet).  Every time I try to get up and walk, my head spins and I go sideways.
Looking up more info on Meniere's online.   Maybe I need a steroid injection into the ear or some gentamycin in there to kill the ear.   The diuretics aren't holding me stable.  At this point, I would give up the hearing in my left ear to stop the vertigo and tinnitus.

Tried to tough it out but 30 mins after writing that, I had to go to bed and sleep it off.   That's 3 hours I will never get back.   All better now, though.

Friday, June 17, 2011

Hearing poor but no Vertigo

Always on guard for any sign of the spinning returning.  Nothing since my last attack that sent me home from work.   I have noticed that I am having more trouble hearing at work.  I'm now having trouble understanding male voices.  troubling.
Seeing Dr Hegarty in 4 days and have an appt to get my HA adjusted after that.   If my hearing is still deteriorating, then I may be needing a new earpiece for the HA.   and if my hearing is still deteriorating, I may need a different job.  

Friday, June 10, 2011

Another Bad Day

Was doing well and hopeful for a stable chronic disease state on the Lasix and Diamox.   My hearing was subjectively better and had no more vertigo.  Until two days ago.
At work, about 9:30, and had a sudden onset of dizziness.  Mild at first but worsened to full spinning.   Went and laid down in the locker room.  By 10, the vomiting started.  At that point, there was no going back.   Any time I tried to get up, my head spun.  I had to hold onto the walls.   I had to call Annie to come pick me up.  Went home and went to bed.   Feel really bad to skip out on work too.  
I know Dr Hegarty said to avoid the Meclizine but I let that one get out of control before I took it and couldn't get back.
This morning, I am having some mild dizziness.   Took some Meclizine as soon as I felt the symptoms.  I am visiting CA and can't be laid up for a day w a vertigo attack.
I need to ask the Dr about the sodium connection.  The day before my last bad attack, I ate some Dominos pizza.  Didn't know until later that it was packed with over 4 gms of Na.   I wonder if there is that direct connection.  And on the diet thing; I am finding that my new disease life is going to severely limit my foods.  No pickles or olives.  No fast food or mexican food.    Just about everything that I eat now has to be fresh and homemade.   Not a bad thing but adds a burden to my schedule.  It's not always convenient to cook fresh and pack a lunch for work.  No more stopping on the way home for a take out meal.    This disease really sucks.